First Annual Tournament: Take A Swing At ALS!
First Annual: Take A Swing at ALS!
October 22,2022 Saturday 1:00pm
As some of you know, our dear friend, Sarah Durand, in Sep. 2020 received the shocking and life-altering diagnosis of Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s disease. Sarah was only 39 years old at the time of her ALS diagnosis and was given 14 months to live. Prior to her diagnosis, Sarah enjoyed her career as a massage therapist and led an active lifestyle, enjoyed the sport of paddleboarding, and often participated in fundraiser events for breast cancer. This tragic diagnosis has been devastating for Sarah, her loving husband Danny, and their extended family and close friends.
At present, there are no treatments that can permanently halt the progression of the disease, and there is no cure. The average lifespan is 2 to 5 years from the onset of symptoms, with no effective treatments available through insurance. This disease is very rare; at any given time, there are only 30,000 people living with it in the United States. According to HuffPost.com “ALS is a very expensive disease, costing patients an estimated $300,000 per year. This majority of patients bankrupt their families with the cost, and an even larger number simply can’t afford the cost to stay alive, so they don’t. Can you imagine having to stop being alive because it’s too expensive”
To learn more about Sarah and her ALS journey, visit the 2021 Under Ballou Skies Hero: Sarah Durand. Sarah was the guest speaker at the 2021 Under Ballou Skies event that raised more than $160,000 for the ALS Association Texas Chapter!
Our Sarah is a fighter, and I am asking for your help and support so she can continue to fight this debilitating disease. All proceeds from Go Fund Me will go directly to Sarah to help with treatment, therapy, supplements, and equipment. Please consider donating! If you’re not able to donate, sharing this link with friends and family on social media will be greatly appreciated!